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#safeguardingresearch

7 posts7 participants1 post today
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Safeguarding Research/Culture

Update: We got the NCI ontology, including a history of former versions etc. pp.
All in all ~25GB.

This does not solve the issue of all the things dependent on the 'official' version, but at least we can safeguard.
#SafeguardingResearch

neuromatch.social/@jonny/11415
cc @Cmungall @jonny

Neuromatch Socialjonny (good kind) (@jonny@neuromatch.social)@Cmungall@genomic.social slightly buried the lede here: https://genomic.social/@Cmungall/114152616246522594 Specifically, they have deprecated the concept of being trans in the National Cancer Institute linked data vocabulary. This means at a fundamental level, it is impossible to merely *represent the existence* of trans people in the data that relies on this vocabulary. These vocabularies are used as the basis for a wide array of downstream research and clinical applications - and are a critical backbone of any hogshit "AI" health product your doctor or their bosses will force upon us. This is a deep infrastructural attack on trans people whose impact is hard to measure - not just banning trans healthcare, but banning the ability to *describe* trans healthcare.
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Henrik Schönemann

Ask me about:
- 1 toot with >1k boosts
- 3 mentions in newspaper articles because of stuff I wrote on here
- 1 TV segment at 8pm news (Dutch)

Oh, and the whole of #SafeguardingResearch would not exist without this place.

Just as a counterpoint to the "You can't go viral"

hackers.town/@RadicalEdward/11

hackers.townRadical Edward :hackers_town: (@RadicalEdward@hackers.town):GeordiSaysNo: "You can't go viral on fediverse like you can on the corporate platforms." :GeordiSaysYes: "The bar is lower on fedi, so like 17 likes is like you blowing up."
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Henrik Schönemann

You have heard of #SafeguardingResearch and know a thing or two about coding / technical writing?

We could use your help with #SciOp sciop.net ; see issues here:
codeberg.org/Safeguarding/scio

the label "help wanted" means "stuff that might be nice for someone to claim as a project and is relatively self-contained", but all issues would benefit :)

cc @SafeguardingResearch

sciop.netSciOp - Public Information PreservationPreserving Public Information
Continued thread
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Franziska Köppe | madiko

Additional info by Björn @brembs concerning ongoing #SafeGuardingResearch & #DataRescue initiatives
mastodon.social/@brembs/114114

// @CopernicusEU @ZLabe @S4F @SafeguardingResearch @riffreporter @Riff_PlanG @kachelmannwetter

MastodonBjörn Brembs (@brembs@mastodon.social)@madiko@mastodon.green or https://op.europa.eu/en/publication-detail/-/publication/3603e219-6a65-11ef-a8ba-01aa75ed71a1/language-en Just as some evidence that I have been spreading the solution for some time now and that there has been some, slow progress recently 😇 I have also started to write something that everybody can use as a template to keep pushing at their own institutiions: https://cryptpad.fr/doc/#/2/doc/edit/C65EM+kOfMsSklipy5iSYWWE/
Continued thread
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Franziska Köppe | madiko

Additional info by Björn @brembs concerning the ongoing #SafeGuardingResearch & #DataRescue initiatives
mastodon.social/@brembs/114114

// @CopernicusEU @ZLabe @S4F @SafeguardingResearch @riffreporter @Riff_PlanG @kachelmannwetter

MastodonBjörn Brembs (@brembs@mastodon.social)@madiko@mastodon.green Yes, I've remained calm for these last 12 years (the screenshot is from one of the presentations I've been giving for nearly 20 years now) 😜 I know, e.g. the EBI does have copies, but a decentrlaized solution such as outlined, ee.g., here https://royalsocietypublishing.org/doi/10.1098/rsos.230206 is always preferrable to some backup that needs to be triggered. The EU is on board with this, see, e.g.: https://www.consilium.europa.eu/en/press/press-releases/2023/05/23/council-calls-for-transparent-equitable-and-open-access-to-scholarly-publications/
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Asterisk

Ich stelle mich dieses Jahr für den @DHd Vorstand zur Wahl. Ich vertrete da Themen wie #MultilingualDH oder #DHBib, will mich aber für noch ein weiteres Thema stark machen: Ich finde, dass Wissenschaft deutlich politischer werden muss angesichts der politischen Gesamtlage. Ob Prekariat, Hierarchien, Gatekeeping, reaktionäre Kulturkämpfe, Themen wie #SafeguardingResearch… Gerade der @DHd kann und sollte helfen, betroffene Forscher:innen/Forschung als Supportnetzwerk zu unterstützen. #Dhd2025

Replied to Henrik Schönemann
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NFDI4Culture

@lavaeolus @NFDI @NFDI4Memory @Textplus @nfdi4objects Lieber Henrik 👋 wie ist denn der Stand zu deiner Anfrage für mehr Austausch zum Thema #SafeGuardingResearch? Unsere Helpdesks sind ja vernetzt, wir könnten hierzu z.B. auch den Kontakt zu unseren #LegalHelpdesk herstellen: nfdi4culture.de/de/helpdesk.ht. Freuen uns auf jeden Fall zu diesem aktuellen Thema im Kontakt zu bleiben 🙏

nfdi4culture.deHelpdesk - NFDI4Culture
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Claudine C :antifa:

Find your people if you can, so you can work together and care for each other. If you're in the fediverse, you're already part of a community.

Finding fellow archivists and data hoarders involved in #SafeguardingResearch has helped me feel that I can make real practical contributions in the current crisis. (It doesn't hurt that I'm also surrounded by queer activists and archivists at my day job.)
hachyderm.io/@evacide/11406084

Hachyderm.ioevacide (@evacide@hachyderm.io)I cannot overstate the value of being in community with other activists right now. It is what gives me the strength to get up in the morning and fight fascism.
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Henrik Schönemann

I see this call making the rounds again - let me quote from the mission-statement of @SafeguardingResearch:
"Our archive is built according to the principles of #FAIR and #CARE, based on open technologies and standards, and resilient against loss via meaningfully distributed storage."

Please join us:
"As researchers we often say 'we need the data'. Today, the data needs us." — @KathyReid

see 🧵2/2

upstream.force11.org/open-scie
#OpenScience #SafeguardingResearch

🧵1/2

Upstream · Science is Under Siege: The Open Science Community Must Act and Lead by ExampleWorldwide, science is under attack by anti-scientific movements. The new US administration has thrown the entire academy into chaos, threatening global health. This article is a call for the open science community to practice what it preaches and lead by example in defending science.
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Safeguarding Research/Culture

Status Update 2025-02-21: all quiet?!

Activity on the forum died down a bit and it may seem that everything kinda ground to halt. I think we arrived at a much needed short rest (at least for me) and I want to take this opportunity to say a few things:

We (especially you) have done an incredible job over the last few weeks!
[...]

More at safeguarding-research.discours
#SafeguardingResearch

Safeguarding Research & Culture (SRC) — Distributing Cultural Memory · Status Updates2025-02-21: all quiet?! Activity on the forum died down a bit and it may seem that everything kinda ground to halt. I think we arrived at a much needed short rest (at least for me) and I want to take this opportunity to say a few things: We (especially you) have done an incredible job over the last few weeks! The amount of data already safeguarded truly is staggering. And we had some tangible impacts: (medical) practitioners as well as researches are able to continue working because of us. I...
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